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For over 30 years, Sanofi have worked with patients and doctors to generate data to deliver better care for patients with rare diseases. Watch this video to find out more about the milestones achieved since the establishment of the first rare disease registry in 1991.

Commitment to Rare Disease Registries

The History of Rare Disease Registries

Read the publication that highlights the history, process and impact of rare disease registries; the largest observation database for lysosomal storage disorders.

MAT-XU-2305205 (v1.0) Date of preparation: November 2023