This website contains promotional content and is intended for Healthcare Professionals based in the United Kingdom only. Some content is only relevant to HCPs practising in Great Britain (England, Scotland, Wales). This website is optimised for desktop use, and some features may perform differently on mobile devices.

Adverse event reporting can be found at the bottom of the page.

Campus
  1. Article
  2. Source: Campus Sanofi
  3. 23 Oct 2023
2 min

Supporting Real-World Evidence Generation: Rare Disease Registries

Author: Sanofi

Editorial Team

   

For over 30 years, Sanofi have worked with patients and doctors to generate data to deliver better care for patients with rare diseases. Watch this video to find out more about the milestones achieved since the establishment of the first rare disease registry in 1991.

Commitment to Rare Disease Registries

The History of Rare Disease Registries

Read the publication that highlights the history, process and impact of rare disease registries; the largest observation database for lysosomal storage disorders.

MAT-XU-2305205 (v1.0) Date of preparation: November 2023