"My only regret is that I didn’t find out about [ALTUVIIIO] sooner.”
Taking an active role in my treatment
I was not a partner in my own treatment, but more of a passenger. I believed that if a medication was approved for hemophilia, then it should be working. If it wasn’t, that meant I must be doing something differently than other people with hemophilia. I was constantly having bleeds when I was active, and I just knew I needed something that worked or else I would get worse and slip back into procrastinating on infusion days.
Making the switch
I felt slightly nervous about going to a new treatment. Even though others were having good results, I was worried it wouldn’t work for me. Once I decided to make the switch, my doctor got me in touch with the specialty pharmacy I used, worked with insurance, and answered all of my questions. I think I spoke with my HTC nurse 2 or 3 times after starting. My Sanofi Patient Representative called and checked in with me several times, making sure that I was receiving my factor, that there was no issues with it, and asking if I had any questions or concerns. I also utilized someone from the team to lock in the copay assistance.
Expectation vs experience
ALTUVIIIO has done better than I expected. My levels are higher than I thought they would be, and I have not procrastinated a single time or pushed a dose back to the next day. To my surprise, I didn't have any breakthrough bleeds.
This testimonial reflects one patient’s experience and has not been clinically evaluated. It is not intended to imply typical outcomes or substitute for clinical evidence. Brad is a promotional speaker compensated by Sanofi.
HTC=hemophilia treatment center.
