“A once-weekly dosing schedule has made a huge difference for my son since switching to ALTUVIIIO.”
A tough start
From the time he was a toddler, my son was on an every-other-day prophylaxis. At age 2, he could identify a bleed, and had multiple breakthrough bleeds monthly. I kept comprehensive records, but was told by our doctor he likely wasn’t having that many bleeds. I felt dismissed, and he was teaching my son not to trust his body.
A new chapter
With an insurance change, we got a new hematologist. She said we could do better with the number of bleeds. She explained ALTUVIIIO was an option to consider, and provided a lot of information about the potential benefits and side effects. Even so, I was nervous about switching due to inhibitor risk, and because nothing worked well before. My son, however, was excited about ALTUVIIIO. He was interested in a once-weekly schedule. It was important to protect his vein health, but having his factor levels stay higher for longer was a compelling reason to switch treatments. Having a doctor answer all our questions and provide thorough explanations helped a lot. Seeing the data did too. The numbers spoke for themselves!
Experiencing the benefits
Since my son switched to ALTUVIIIO in August 2023, he has had no spontaneous breakthrough bleeds so far.* And it’s the first time in his life he hasn’t been constantly infusing. He’s as active as he’s always been. Even with 2 broken bones since making the switch, in this instance he only needed one on-demand dose rather than multiple days’ worth on the old product. A once-weekly dosing schedule has made a huge difference for my son.
Having the conversation
With chronic diseases, it’s easy to feel things might not improve. I thought this was just how my son responds to medication. We felt “this is as good as it gets,” until our doctor explained about ALTUVIIIO. I hope other doctors take this approach—willing to share different options, being open about side effects, and providing as much information as possible—to help patients find a treatment that works for them.
This testimonial reflects one patient’s experience and has not been clinically evaluated. It is not intended to imply typical outcomes or substitute for clinical evidence. Nika and Zander are promotional speakers compensated by Sanofi.
*Based on data collected in December 2025.
